CCFHH Program Awardees: Specific Event
From WikiAdvocacy
Some of the program awardees used their Does It Run In the Family? materials at an event that was specific or relevant to their cause. Synopses of these programs are below along with links to their full reports.
[edit] Angioma Alliance
Angioma Alliance distributed their Does It Run In the Family? booklets at events during Cavernous Angioma Week.
- Angioma Alliance used the Does It Run In the Family? toolkit to educate a broad audience in New Mexico about the Common Hispanic Mutation, a form of cavernous angiomas traced to the original Spanish settlers of 1598. Angioma Alliance partnered with the city of Santa Fe and the state of New Mexico to distribute booklets through clinics, physicians, public awareness events. They encouraged newly diagnosed and at risk patients to become keystone family members who educate others. Click to see Angioma Alliance: Final Report.
[edit] Lesbian and Gay Family Building Project of the Ferre Institute, Inc.
The Ferre Institute distributed their Does It Run In the Family? booklets during the 2009 Pride and Joy Families Weekend Conference.
- The Lesbian and Gay Family Building Project of the Ferre Institute, Inc. used the toolkit within their existing Family Health History Initiative to engage 300 LGBT families in the upstate New York area to determine what family history information, if any, they are collecting. Booklets were distributed to promote health awareness, and the services of a genetic counselor were offered to families who have questions during health history collection. Click to see Ferre Institute, Inc.: Final Report.
[edit] West Side Community Health Services
West Side Community Health held educational sessions and distributed their Does It Run In the Family? booklets at two Hmong college student conferences: Hmong College Students of Minnesota in St. Paul, MN, and the Hmong National Development in Appleton, WI.
- West Side Community Health Services works with the Hmong population in and around St. Paul, MN. The toolkit was customized for the Hmong community to increase their knowledge about the relevance of family health history and genetics to health, and clarify issues of heredity in a culturally competent manner for a group steeped in traditional ideas about inheritance and illness. Click to see West Side Community Health Services: Final Report.
Click here to return to Family Health History.
