CCFHH Program Awardees: Focus Groups for Customization
From WikiAdvocacy
Two of the program awardees performed a higher level of customization to the Does It Run In the Family? booklets than the general customization allows. In order to make changes that especially suited their audience and organization, focus groups were held.
[edit] Duke University Institute for Genome Sciences & Policy
The Duke University project conducted 4 focus groups of ~58 people to discuss how to best customize the booklets. These meetings also gathered information on the importance of family health history, health conditions of greatest concern, and ways to promote family health history to employees.
- The Duke University Institute for Genome Sciences & Policy partnered with the Department of Employee Occupational Health & Wellness to incorporate the Does It Run In the Family? toolkit into the Duke Employee Health program, LIVE FOR LIFE with the aim of advocating awareness regarding the value of family health history and encouraging its collection among employees. The customized family health history tools implemented alongside established health promotion and disease prevention programs of in-person health assessments and web-based resources, thus enabling sustained promotion and accessibility of family health history resources for the benefit of the large, diverse Duke employee community. Click to see Duke University Institute: Final Report.
[edit] Heredity Project
The main focus of the family health history project from the Heredity Project was the actual customization of the booklets. They used a community-based approach by holding 6 scheduled events as well as workshops. These discussed the project and collected stories from members. By doing this, the booklets would maximally resonate with the target audience. Through discussions, they concluded that the conditions included in the booklets should be bunions, addiction, diabetes, breast cancer, and PKU.
- The Heredity Project, a genetic literacy project for the general public, partnered with staff and members of Curves-Midtown Memphis, TN, to customize the Does It Run In the Family? toolkit with stories collected from gym members. Curves is an international fitness franchise with a reputation for providing outreach to members to promote healthy lifestyle choices; Heredity Project used this novel partnership to garner local and national media coverage in order to promote awareness of the value of knowing one's family health history. Click to see Heredity Project: Final Report.
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