CCFHH Program Awardees: Disease-Specific
From WikiAdvocacy
The efforts of some award-winning organizations focused on a specific disease audience. Below are the report synopses of the 3 organizations that used the tool in this capacity, plus links to their full final reports.
[edit] Angioma Alliance
The Family Health History project of Angioma Alliance focused on individuals and families affected by Cavernous Angioma.
- Angioma Alliance used the Does It Run In the Family? toolkit to educate a broad audience in New Mexico about the Common Hispanic Mutation, a form of cavernous angiomas traced to the original Spanish settlers of 1598. Angioma Alliance partnered with the city of Santa Fe and the state of New Mexico to distribute booklets through clinics, physicians, public awareness events. They encouraged newly diagnosed and at risk patients to become keystone family members who educate others. Click to see Angioma Alliance: Final Report.
[edit] Brookdale University Hospital Medical Center
The Family Health History project of Brookdale focused on individuals and families affected by Sickle Cell Disease.
- Brookdale University Hospital Medical Center customized the Does It Run In the Family? toolkit to be used within one current program, a culturally competent and comprehensive system of care for those with sickle cell disease and trait, focused on increasing patient, public, and professional awareness of sickle cell disease. The toolkit was distributed to current patients, future referrals, parent support groups, and community outreach programs at the Brooklyn Public Library, school PTAs, faith-based institutions, and other local organizations. Click to see Brookdale University Hospital Medical Center: Final Report.
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