CCFHH Program Awardees: Community System
From WikiAdvocacy
Some of the program awardees used their Does It Run In the Family? materials to inform members of their community. Synopses of these programs are below along with links to their final reports.
[edit] Angioma Alliance
Angioma Alliance introduced the Does It Run In the Family? booklets to members of the community through a local clinic and at special events.
- Angioma Alliance used the Does It Run In the Family? toolkit to educate a broad audience in New Mexico about the Common Hispanic Mutation, a form of cavernous angiomas traced to the original Spanish settlers of 1598. Angioma Alliance partnered with the city of Santa Fe and the state of New Mexico to distribute booklets through clinics, physicians, public awareness events. They encouraged newly diagnosed and at risk patients to become keystone family members who educate others. Click to see Angioma Alliance: Final Report.
[edit] The Genomedical Connection
The Genomedical Connection distributed their Does It Run In the Family? materials to various members of the community through health fairs, focus groups, presentations, and more.
- The Genomedical Connection partnered with congregational nurse programs and military reserve units to educate Guilford County, NC, residents about family health history through community presentations, health fairs, and more. One focus was on 'kin keepers,' individuals in a family who spread news, arrange get-togethers, and otherwise promote solidarity and unity among family members. Click to see The Genomedical Connection: Final Report.
[edit] Southern Missouri Telehealth Genetics Services
Southern Missouri Telehealth Genetics Services distributed their Does It Run In the Family? materials to the community through clinics, family physicians, and public events.
- Southern Missouri Telehealth Genetics Services used telehealth technology to bring family health history information to individuals without immediate access to a healthcare provider. In addition, SMTGS utilized its extensive telehealth network to reach out to partner groups in each region of southern Missouri, including libraries, home and garden shows, early childhood fairs, radio stations, and career enhancement scholars programs to bring family health history discussion to audiences not traditionally focused on health. Click to see Southern Missouri Telehealth Genetics Services: Final Report.
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